I am Alive...I Promise

Long time no blog. I am alive, I promise. In the last 6 months, things have been INSANE!!!! Ben got up in as Elder's Quorum President, I got put in as the Second counselor in primary, and it was summer. Summer was crazy busy, and then Braeden started school. He started pre-k this year. He loves it. He wakes up everyday at 5:30...an hour too early and gets ready. He loves to learn and this is where he should be. We get up and walk or bike him to school and back.

Summer: We moved to a new house the first of June. It is amazing and awesome. I feel so much better here. I can finally breathe a sigh of safe relief. We have a pool just down the road. We didn't go as much as we would liked to have done, but we did go a lot. It was a great way to spend the TEXAS HOT DAYS. Emerson can swim with just a floaty on and Braeden too. They are fish.

Crose Wedding: My second sister got married in the Manti LDS temple. It was amazing and awesome and our two weeks trip was great. It was so wonderful to spend time with my family and go to the temple again. It was peaceful and wonderful. I got to see my wonderful and best friend Devri while I was there and her now two little boys. They are adorable and so is she. Love you Dev. 

Kellie to Snow: Right after my sister was married, we took another sister to college. She is going where I went and living above where I lived.Talk about memories flooding back. I really miss Snow and all of the wonderful people and things that happened there. Those are treasured memories. I only hope that she knows she is blessed to be there and that she can make wonderful memories of her own. 

Ben Deployment: Ben is tasked to be deployed this April...I know, I am not saying anything else because for now, I want to forget. My mind is numb for now to this.

New friends: Our new friends just happen to be our neighbors and they are fantastic. Kids the same age, and guess what....she is from Monroe, UT...yep, where I grew up. It is wonderful to have such great friends here. We have got each others backs. It is a nice feeling.

Chiari: I stopped taking my meds a while back because well, frankly, I was tired of taking them. I was feeling terrible and terrible and oh, did I say terrible. It took a while for my body to wean off of them and get everything out of my system, but I finally did. I feel better. I still have occasional death  headaches (chiari) and pressure headaches every time I lay down or bend over, and somedays I have them all day. I am not going to let this disease get me. I have to fight with all I have. Somedays are better than other for sure. I am still weak a lot and I know my limits. My kids get a lot of cuddle movie time with their mom. 

Chiari walk: I went to my first Chiari walk. It was so special. I felt so special. They spotlighted us and told us we were the heroes. For the first time since I was diagnosed, I felt like someone actually recognized this and something that is a real thing. That it is okay to talk about and it is serious. Two people in the last week have that I know died from this disease. We need to find a cure or something not so traumatic on the body to help cope. We spent the morning talking, talking with people who are just like me, buying jewelry :), getting free stuff, and then for the walk. It wasn't long because of a lot of Chiarians can't walk too far. It was such a special moment when I crossed that finish line and everyone clapped. My wonderful boys by my side. I am so grateful they were there. Braeden has a good time riding his scooter around. Later he told me that it was so fun being there with me. 

Well, that sums up life...but it sounds so, so, not crazy. I feel like I haven't been able to catch my breath for a while. Hopefully soon things slow down a little. I am not betting on it though.