Conquer Chirai Walk September 2013

I am beyond excited to go on this walk. There are so many reasons why. I am so excited to meet other people who go through the same things I do. I already know one close friends wife who was diagnosed a few months ago. Other than that...facebook support groups is all I have. I can't wait to have my family participate is something for me to support me, I will feel some sort of will to go on and that I can make it through this. I am going to make shirts for our family(because they are $25 a piece and I can do them for way cheaper).

Here is my personal fundraiser page... https://www.conquerchiari.org/ccwaa/sites-2013.html

Lately things have been getting more complicated. My botox wore off and I could feel the second it was gone. That made the pain even worse because it is like the calm before the storm. My head feels like it is stiff and on fire again. My pressure, cough headaches are back. Or anytime I climb the stairs...I have to stop at the top or about 5 seconds later my head is pounding and I am dizzy until my head pressure can adjust. It is miserable and I dread telling my doctor because nothing we have tried so far has really really worked. I feel like he is just going to get sick of me and kick me to the curb. He is a super doctor and I know he wouldn't do that. It just scares me. I up-ed my dose on my one kind of headache med yesterday, so hopefully that works. I have been taking my neck pain headache med at night more and I am just tired all the time. It is supposed to make me sleepy and tired. Oh boy, it does. I don't want to wake up in the morning and with two boys climbing all over me in the morning wanting breakfast...it is so hard. I just need my sister in law Edith who is a massage lady to live with me and give me neck massages everyday. That would have to help right? Who knows.

We are going on a vacation this weekend, and I am dreading a 16 hour drive. My body is going to hurt and ache. I am going to be so uncomfortable and my head is...just going to hurt. Misery! Wish me luck! It should be a fun trip for the kids to see their grandparents in Missouri. They live on a lake, so the kids should be in heaven for a few days.